Karen Adams

Ms. Adams has 15 years of professional practice since receiving her MSN from Syracuse University in 1996. Her commitment to public health began when working in a low-income public health clinic and performing volunteer work with Mission of Mercy, a charitable organization providing free health care services to the poor of central Pennsylvania. In 2004 Ms. Adams joined the Pheochromocytoma/Paraganglioma (Pheo) protocol at the National Institute of Child Health and Development. As one of two permanent members of the Pheo team she has helped increase the number of patients treated each year by more than 500%. Recognizing the difficulty patients encounter when trying to learn of this rare form of cancer, she organized the 1st National Pheo/Para Patients Conference in 2006, an event she has organized each succeeding year. With her knowledge of patient issues she brought together concerned patients and family members to organize themselves, being the foundress of the Phe Para Alliance, a 501c3 charity that provides finding to research and treatment programs throughout the world. She serves as Secretary to PRESSOR  Pheochromocytoma Research Support Organization, an international organization of pheo doctors and researchers and is on the organizing committee of the International Symposium on Pheochromocytoma (ISP) and has co-authored more than 15 refereed journal articles.


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